Update on Doctors Appointment

We feel very positive about Jess's appointment today at the specialist.  Shame, they took 9 viles of blood and are going to be running a series of tests. We will be going back next week for the results.  The Doctor has warned us that he will be taking more blood at our next appointment.  We are holding back on the Angelman and Rhett Syndrome Tests for now until he has completed the blood tests.  He also suggested that we do a follow up MRI Brain Scan and have her eye's tested as apparently many conditions can be identified by the deterioration of the retina.  We have therefore decided to use part of the funds received thus far towards any tests that need to be done now and any further specialist appointments that we need to take Jess to.  To see any updates on the funding received to date please refer to the Contact Details Page and Her Story page for a follow on to any blog updates.
Once again, we would just like to express our heartfelt gratitude for everyone's support and selfless generocity.