First and foremost, we have to boast as to how well Jess is doing in her standing frame.  Generally, she is now managing around 45 mins twice a day however last night she managed to tolerate a full hour and 10 mins before starting to moan!  We are so proud of her for the progress she is making.  Both the Physio and Occupational Therapists were happy with her on Monday.  Jess started her walking training again and her exercises with the elbow immobilizers.  The muscles in her arms are still quite weak so it will take a while until she is able to lift her arms properly with the immobilizers on.  We have also received confirmation from our Geneticist that Jess's DNA reached the UK on 14 June and that we should expect a 4-6 week waiting period until we receive any results.  We are starting to master the waiting game :)



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