The response that we've received since Jess's site went live on Sunday has been amazing. People that we don't even know, taking the time to read Jess's story and relaying their thoughts, prayers, advise and where possible a donation. Through the site, a mom to a little boy with similar difficulties to Jess contacted us and referred us to her son's specialist. We have an appointment to see him next Wednesday. He specialises in lysosomal disorders and has an extensive academic background. We are feeling positive about the appointment.
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