We would again like to express our gratitude to everyone that has very generously supported our plight to get a diagnosis for Jess as well as the specialized equipment that we need to make her life easier.  To our friends and family, anonymous benefactor's and people that we haven't even met, we feel so blessed because of you.  We are meeting with the Orthotist again next week as her Physio Therapist has picked up a slight curvature on her spine.  Luckily it is only muscular at this stage and hasn't moved into the bone.  Jess 'will get a Thera Tog, which is a full body suite that she will need to wear for 8 hours a day to aid in correcting her posture and hip rotation.   
sally
12/14/2011 05:29:51 pm

So proud to know two parents like you your never ending support for your daughter is something to be very proud of.

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